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May 14, 2020 by Amanda MacGregor

That’s the Thing with the Shots, Right? a guest post by Eve Yohalem

May 14, 2020 by Amanda MacGregor   Leave a Comment

Eve and Jen

I don’t remember a time when diabetes wasn’t part of my life. I was eight and my sister, Jennifer, was thirteen when she developed type 1—what used to be called “juvenile diabetes” because it occurred most often in children. A couple of months after she was diagnosed, Jen read an article in PEOPLE magazine that said diabetes cut life expectancy in half, which meant she could expect to die by the time she was forty. From that moment on, Jen told me, she felt like she was living on borrowed time, scared she wouldn’t live to get married or have children, terrified she wouldn’t get to grow up.

Forty-five years later, Jen is still alive and married with a son and two dogs. Nowadays, thanks to huge improvements in treatments, plenty of people with diabetes live well into old age. But there’s still no cure. And another thing that hasn’t changed? Diabetes is still invisible.

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I gave Blue, the main character in The Truth According to Blue, diabetes because I wanted to show what it’s like to have a life-threatening condition you need to think about all day every day that no one else can see. Best friends, teachers, and even sisters often don’t know how dangerous and all-consuming diabetes can be. I thought I knew a lot about the disease when I started writing. After all, I’d lived with my sister my whole childhood, and on top of that, I have borderline type 2. What could I possibly not know?

Turns out, a lot. I was amazed by how much I learned from my sister and other people with diabetes while I was researching. When you have diabetes, you’re never not thinking about it. Everything—and I mean everything—you eat, drink, do, and don’t do affects your blood sugar. And no matter how careful you are, sometimes your body just won’t listen. Or the technology breaks. Or both.

Last Thanksgiving, I sat next to Jen. Just before we started eating, she nudged me. I looked down at her glucose monitor. Her blood sugar was over 300, which is really high. I knew what that meant. You can’t eat with high blood sugar because food makes your sugar go even higher. Which meant Jen had to take insulin, wait fifteen minutes for it to kick in, check her blood sugar again, and repeat the process until her sugar went down to normal. Did I mention Thanksgiving dinner is Jen’s favorite meal?

“What’s up with that?” I whispered. Jen shrugged. “No clue. It’s been like that for two days. I can’t get it down.”

I tried not to show my panic. What if her blood sugar won’t go down? How often does this happen? Her diabetes is getting worse. Meanwhile, no one else at the table had any idea what was going on. Jen must have felt sick, but she looked fine, and nobody except me noticed her pushing some food around her plate and not eating.

That’s what it’s like to have diabetes.

Blue is spending the summer hunting for sunken treasure in a bay off Sag Harbor and dealing with a movie star’s spoiled daughter who insists on tagging along with her. At the same time, she’s monitoring her blood sugar, and feeling dizzy or tired or nauseated or worse when it gets too high or too low. Lucky for Blue, she has Otis, her beloved diabetic alert dog who’s specially trained to smell changes in blood sugar. The picture on the book jacket tells the story: two girls and a dog on a dock, scanning the water, a sunken ship beneath them. Summer fun! Adventure! Mystery! Well, yes, that’s all in the book (or at least I hope it is!). But if you look closely, you’ll see Otis is bowing down, which is how he alerts Blue that her blood sugar is low. He isn’t playing; he’s telling her she needs to stop whatever she’s doing and deal with it. As Blue says, Otis saves her life every day.

Diabetes doesn’t cut your life expectancy in half anymore, but it’s still life-threatening, and it’s still a heavy, lonely burden to carry, especially when you’re a kid. I wish there had been an Otis for Jen when she was growing up. And a book with a girl like her who has diabetes but still makes new friends and goes on big adventures. I wrote The Truth According to Blue because I wanted kids today with diabetes—and their friends, classmates, siblings, and cousins—to have the book my sister didn’t have.

Meet Eve Yohalem

Photo credit: Nicholas Polsky

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Eve Yohalem is the author of middle grade novels The Truth According to Blue, Cast Off: The Strange Adventures of Petra De Winter and Bram Broen, and Escape Under the Forever Sky. She is also the co-creator and co-host of “Book Dreams,” a podcast for everyone who loves books and has ever wondered about them. Eve lives in New York City with her family and their two cats.

LINKS

Eve’s website: https://www.eveyohalem.com/

Eve talking about THE TRUTH ACCORDING TO BLUE: https://vimeo.com/394969283

Book Dreams podcast: https://www.bookdreamspodcast.com/

About The Truth According to Blue

A heartfelt middle grade adventure about one girl’s search for sunken treasure, friendship, and her place in the world.

Thirteen-year-old Blue Broen is on the hunt for a legendary ship of gold, lost centuries ago when her ancestors sailed to New York. Blue knows her overprotective parents won’t approve of her mission to find their family’s long-lost fortune, so she keeps it a secret from everyone except her constant companion, Otis, an 80-pound diabetic alert dog. But it’s hard to keep things quiet with rival treasure hunters on the loose, and with Blue’s reputation as the local poster child for a type 1 diabetes fundraiser.

Blue’s quest gets even harder when she’s forced to befriend Jules, the brainy but bratty daughter of a vacationing movie star who arrives on the scene and won’t leave Blue alone. While Blue initially resents getting stuck with this spoiled seventh grade stranger, Jules soon proves Blue’s not the only one who knows about secrets — and adventure.

Will Blue unravel a three hundred year-old family mystery, learn to stand up for herself, and find the missing treasure? Or is she destined to be nothing more than “diabetes girl” forever?

ISBN-13: 9780316424370
Publisher: Little, Brown Books for Young Readers
Publication date: 05/12/2020
Age Range: 8 – 12 Years

Filed under: Uncategorized

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DiabetesGuest postsMiddle Grade

About Amanda MacGregor

Amanda MacGregor works in an elementary library, loves dogs, and can be found on Twitter @CiteSomething.

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